I am incredibly proud to announce that I have set up a fund in Michael’s memory with The Brain Tumour Charity called The Michael Barry Fund, and I wanted to tell you a little more about why this is such an important cause and my plans to raise money for vital research.
A few weeks after Michael died I received an email about a petition which was soon to be debated in the House of Commons on the issue of funding for brain tumour research. I was feeling brave that day so I clicked the link and started to read, and I couldn’t believe the statistics. Despite brain tumours being the biggest cancer killer of under 40s, less than 2% of the national spend on cancer research in the UK is allocated to brain tumour research, and there has been little change in prognosis over the last 40 years. I read so many stories of other bright young people just like my Michael whose lives were cut short by this cruel disease, and I felt desperately sad and incredibly angry. But as I began to research further, I saw stories of other families devastated by the loss of their loved ones who had gone on to set up funds in their honour through The Brain Tumour Charity to keep their memory alive and to keep fighting, and suddenly I felt less alone.
I want there to be a future where no more lives are lost to this cruel disease, and so I am committing to fundraising for The Brain Tumour Charity through The Michael Barry Fund in the hope that there might one day be a cure. I have so many fundraising ideas in the pipeline, and I hope you might join me in raising as much as we can for this incredibly important cause. To start with, I am aiming to release a range of products soon which are based on Michael’s own designs and sketches, and I am also working on a number of fundraising events such as gigs, creative workshops and craft/vintage fairs. There is a lot to do and life has been so hectic lately, but I will share more when things are up and running. If you have any fundraising ideas of your own please do let me know, whether it be taking part in a sponsored walk or run, organising your own event or designing a product we can sell – the more ideas the better!
Creating The Michael Barry Fund is a huge part of my vow to live positively for my wonderful husband, who I miss every second of the day, and has given me a focus and purpose which I know will help me to keep going. It can be hard to know what to say or do in the midst of such tragedy and people often tell me they wish they could do something to help. I hope that The Michael Barry Fund will provide an opportunity to not only be part of the fight to defeat brain tumours, but also unite every one who knew and loved Michael in a positive way.
If you would like to know more about the fund and our story, we now have a dedicated page on The Brain Tumour Charity’s website – click here to read more. I have also set up a Facebook page and a Just Giving page for the fund, and will of course be using my own personal Instagram page and this blog to share news and updates.